Aging with a disability is a little different from normal aging, I’ve found. I turn 30 tomorrow, and it’s not a small thing for me. Every birthday, I look past tomorrow. Throughout the years, I’ve overheard various remarks (“Wow she made it to 18?” “I didn’t know rubella babies had high survival rates” “You can still see?”) all of which… Read more →
The other night as I was in the tub trying to get my muscles to relax enough for me to sleep, I tweeted a quote from the Princess Bride. “Pain is life, Princess.” Except that’s not the line. I realized this after staring at my tweet for a minute. The quote is “Life is pain, princess.” I sat there in… Read more →
I haven’t been fully open with my readership about what is happening with me this summer, but today I am going to open the curtains and tell people where I am. I am refusing to turn away from a friend who has a brain tumor. I flew across the country on short notice, and I am here for two months,… Read more →
